Wish List and Wishes Granted

With your continued support, we can move items from our wish list to our wishes granted list. Please donate generously now!

Wish List

SPECIALISED SEATING
Spinal support for all Connective Tissue Dysplasia children e.g. Tumble Form Chairs 

$3,600.00

HORSESHOE HEAD PADS ($110 to $150 each)
The rings help to keep the heads of fragile CTD babies in a good shape 

$1,500.00

SOFT CASTING
Water friendly casting material for 10 children @$340 per child to swim after fractures or surgery 

$3,400.00

VIBRATING FOOTPLATES
Vibrating Footplates for enhancement of bone density in five patients @$3,000 each 

$15,000.00

SPECIALISED WALKING FRAME
Specially helpful for children with Brittle bones or multiple joint problems 

$1,500.00

PHYSIOTHERAPY 
Staff-time to up-date Information Sheets /Handling and Management Guidelines. 

$2,000.00

CAMERA AND COLOUR PRINTER 
For preparation of OT reports on clinic patients 

$1,500.00

PHYSIOTHERAPIST GRADE 2 (12 hours per week)
Essential intensive therapies are needed before and after surgery, ongoing rehabilitation.

$19,000.00

OCCUPATIONAL THERAPIST GRADE 2 (12 hours per week)
To support clearing the waiting list for OT school and activities assessments arising from clinic consultation

$19,000.00

CLINICAL RESEARCH ADMINISTRATOR (20 hours per week)
To coordinate clinical trials and ethics committee monthly reporting

$31,600.00

EVENTS CO-ORDINATOR (15 hours per week)
Maximize and guide the ConnecTeD Committee in their Fundraising Efforts.

$30,000.00

CTD SERVICE CO-ORDINATOR (part –time)
Focal contact point for families, scheduling appointments within the multi-disciplinary CTD clinic & liaising with other hospital departments.

$32,000.00

Maintenance of Kazimierz Kozlowski Skeletal Dysplasia Reference Library (part-time)

$32,000.00

SOCIAL WORKER (12 hours per week)
For the family’s emotional or practical needs. Working closely with medical staff and family, both during and after hospitalisation, including school issues

$19,000.00

Fellow in Connective Tissue Disorders

$150,000.00

MARFAN RESEARCH 
Personnel $214,000.00 
Equipment $36,000.00 

$250,000.00

BONE AND MINERAL RESEARCH
Personnel $70,000.00 
Equipment $20,000.00 

$90,000.00

SKELETAL DISORDERS RESEARCH 
Personnel $45,000.00 
Equipment $5,000.00 

$50,000.00

Arthrogryposis Research & Equipment

$50,000.00

Ehlers Danlos / Hypermobility

$72,000.00

Lysosomal Storage Disorders and Innovative Genetic Therapies

$32,000.00

Wishes Granted

SPECIALISED SEATING
Spinal support for all Connective Tissue Dysplasia children e.g. Tumble Form Chairs 

$3,600.00

SPECIALISED SEATING ON WHEELS

$1,260.00

HORSESHOE HEAD PADS ($110 to $150 each)
The rings help to keep the heads of fragile CTD babies in a good shape 

$1,500.00

SOFT CASTING (EACH CHILD 12 MONTHS WORTH)
Water friendly casting material for 10 children that allows a child to swim after fracturing or surgery 

$3,400.00

ORTHOTICS
Vacuum Pump Multiple departments have benefited 

$5,000.00

ENDOCRINOLOGY
Purchase of equipment / vibrating Footplates For enhancement of bone density 

$8,000.00

PHYSIOTHERAPY 
Staff-time to up-date Information Sheets /Handling and Management Guidelines. 

$2,000.00

MANUAL WHEELCHAIRS AND STANDING FRAMES
Wheelchairs cost each $3,300.00 

$7,600.00

COMMODE CHAIR
Adjustable for height, padded & extra back support 

$2,500.00

HANDWRITING KIT
With equipment and splints for trial

$200.00


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