Over 600 known connective tissue disorders exist today

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Request help from your local community with One Another

Did you know that it is easy to request help from your local community? Our Vice President, Adam Heaney has been working with a new social enterprise called One Another to promote local communities being able to help each other during these most uncertain times with COVID. One Another allows …

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AGM notice 2020

ConnecTeD Foundation invites its members to attend the 2020 annual general meeting. When: Wednesday 4th November 2020Time: 7pmWhere: Online Google Meet meeting Registered members are eligible to be elected to the board and to vote for elected board positions. Executive board members must have served as a general member previously …

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ConnecTeD for Kids and the CTD Clinic Video

Back in 2008, ConnecTeD Foundation, then known as ConnecTeD for Kids commissioned a video to describe the wonderful work the Connective Tissue Dysplasia Clinic does for our community of disorders. Back then, the clinic was lead by our current public officer Professor David Sillence and supported by many fantastic clinicians …

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The Marfan Foundation have provided COVID-19 advice for person’s affected by Marfan, VEDS, Loeys-Dietz, and related conditions. The advice is provided by an expert professional advisory board. For more information please go to: https://www.marfan.org/covid19

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