organisations supporting connective tissue disorders
— Short Statured People of Australia (SSPA)
The Short Statured People of Australia (SSPA) is a non-profit organisation that provides support and information for people with conditions of dwarfism, their families and other interested members of the community.The SSPA actively supports the Children’s Hospitals, Bone Dysplasia Clinics and Genetic Support Networks throughout Australia.
— OI Society of Austraila
The OI Society of Australia is primarily a support group for persons with Osteogenesis Imperfecta. The OI Society is committed to encouraging and supporting research into this rare connective tissue disorder along with the provision of education to the wider community and increasing awareness of Osteogenesis Imperfecta to both the general public and professionals.
— MPS Australia
The MPS Society supports individuals affected with MPS, parents of affected children, other relatives and friends of affected children. The MPS Society offers support to those affected by related disorders also.
— Wish Bone Day
Wishbone Day is an international community awareness effort for Osteogenesis Imperfecta (OI), also known as ‘brittle bones’. Wishbone Day is officially celebrated on the 6th May each year.